Sunday, August 17, 2014 · Posted by Alex Richmond, Executive Director
A special thanks to Tampa Bay Rays manager, Joe Maddon, for sporting a CNS Foundation Tee during his post game press conference on August 16, 2014... THANKS JOE!!!
Thursday, July 10, 2014 · Posted by Lindsey Wiltse, Communications and Program Coordinator
PreemieWorld is an online and print magazine created to bridge the gap between parents and professionals in the Neonatal Intensive Care Unit (NICU). With all the challenges that come with bringing home a preemie, PreemieWorld seeks to make daily life a little bit easier. Created by Deb Discenza and Nicole Conn, PreemieWorld uses books, videos, and other products in order to create a new normal in the life of a preemie.
Friday, April 11, 2014 · Posted by Nancy LeGendre
The Pitt Hopkins Research Foundation (PHRF) will participate in the Million Dollar Bike Ride hosted by the Center for Orphan Disease Research and Therapy (CODRT) at the University of Pennsylvania organized jointly with Rare Disease Cycling. The cycling fundraiser, which starts and finishes on the University of Pennsylvania campus on May 3, 2014, will bring cyclists and disease communities together in hopes of advancing drug development for all rare disorders.
Monday, March 10, 2014 · Posted by Lindsey Wiltse, Communications and Program Coordinator
Brain Awareness Week (March 10-16, 2014) is a worldwide initiative to increase public awareness on the benefits of and progresses in brain research. CNS Foundation is supporting Brain Awareness Week through the growth of the Pediatric Brain Mapping Project.
Monday, March 3, 2014 · Posted by Lindsey Wiltse, Communications and Program Coordinator
March is National Cerebral Palsy Awareness Month, and March 25th is National Cerebral Palsy Awareness Day. CNS Foundation spoke with Reaching for the Stars. A Foundation of Hope for Children with Cerebral Palsy to learn more about Cerebral Palsy Awareness events taking place throughout the month.
Friday, February 7, 2014 · Posted by Lindsey Wiltse, Communications and Program Coordinator
February 28 will be the 7th Annual World Rare Disease Day. Rare diseases are an important health issue that cannot go ignored.
Tuesday, February 4, 2014 · Posted by Davis George, Advocate
In My Brother's Corner is a blog series featuring Davis George, the brother of Jacob. In this post, Davis writes on the need for awareness of treatments and advocacy for the advancement of these treatments.
Friday, December 13, 2013 · Posted by Alex Richmond, Executive Director
The World Stem Cell Summit is an annual symposium highlighting advancements in the field of regenerative medicine. CNS Foundation attended as a voice for patient advocates, both speaking as an expert and making a presence at a number of panels across a variety of disciplines. Read more about our experience below!